Headless Preggos
@headlesspreggos is a Twitter account and research initiative led by Alana Cattapan with Danielle Mastromatteo that examined depictions of reproduction in news media. Drawing on the concept of “headless fatties” and journalist Josie Glausiusz’s work on the “headless, legless, pregnancy bump,” it used tweets and retweets to draw attention to the ubiquity of headless pregnant torsos in media mentions of pregnancy and reproduction. This project resulted in the now-inactive Twitter account, several conference presentations, and an article in Medical Humanities.
SURROGACY IN CANADA
This collaboration, co-led by Vanessa Gruben, Angela Cameron, and Alana Cattapan was an initiative to expand knowledge about the state of surrogacy (and other reproductive technologies) in the Canadian context, and to inform law and policy based on the knowledge produced. This work resulted in a co-edited collection published with Irwin Law in November 2018, in addition to public events, workshops, blog posts, and consultations with government, and informed the development of the Surrogates Voices‘ project. This work was funded by the Social Sciences and Humanities Research Council of Canada, with support from the Centre for Health Law, Policy and Ethics, and the Shirley Greenberg Chair in Women and the Legal Profession.
TRANS RESEARCH AND NAVIGATION SASKATCHEWAN
This project, led by Stéphanie Madill and Megan Clark (together with community partners, people with lived-experience, health care providers, researchers and others) investigated how to improve experiences of health care services in Saskatchewan for trans and gender diverse people, as well as health care outcomes. The project, funded by the Saskatchewan Health Research Foundation and Saskatchewan Centre for Patient-Oriented Research, included the piloting of a peer-navigator program to support people as they access the health system.
ENGENDERING PUBLIC ENGAGEMENT
The 1970 report of the Royal Commission on the Status of Women provided clear evidence of public engagement–reaching out to women across the country about their experiences, and ensuring that their positions were meaningfully heard in subsequent policy making. This project, led by Barbara Cameron (funded by the Social Sciences and Humanities Research Council of Canada) in collaboration with a number of feminist scholars, activists, and organizations, builds on that legacy by asking what the meaningful public engagement can and should look like for women in contemporary Canada.
The recent focus of this work has been on public engagement exercises on “ground up policymaking” with women from underrepresented groups in the Halifax region. (with Alexandra Dobrowolsky, Tammy Findlay, April Mandrona, and Julianne Acker-Verney).
PATIENT GROUPS IN HEALTH POLICY MAKING
While there are clear benefits for patient groups to accept industry funding (often from the pharmaceutical industry), some research suggests the autonomy and integrity of patient groups may be compromised by financial relationships with commercial actors. This project focuses on the experiences of patient groups advocating for the public funding of in vitro fertilization to identify how they work to navigate these relationships and engage in ongoing advocacy to establish and (where applicable) to maintain funding. Using cross-provincial data, it also identifies varied approaches in different provinces, and the outcomes for both patient groups and provincial health policy.
ALTRUISM AND VACCINE TRIAL MOTIVATION
There is an extensive literature that demonstrates that individuals are motivated to participate in clinical trials for a variety of reasons, which include financial compensation, a sense of duty, curiosity, health benefits, boredom, and a concern for public health, amongst others. Little is known, however, about the motivations of participants in clinical trials for vaccines, which typically require healthy volunteers and offer inoculation as the only health benefit to be gained. This research, led by Katharine Browne and conducted in collaboration with NTE Impact Ethics and the Canadian Centre for Vaccinology examines the motivations of healthy participants in two Phase I vaccine clinical trials. Combining empirical (survey) research and philosophical approaches, it identifies what factors motivate participation in vaccine clinical trials, their relative importance for trial participants, and the sociopolitical importance of altruism in vaccine trial participation.
CHEMICAL EXPOSURES AND REPRODUCTIVE HEALTH
As certain classes of household chemicals (namely brominated flame retardants and phthalates) are ubiquitous in our homes and workplaces, the adverse effects of exposure on reproductive health are becoming apparent. Focusing on torts and criminal law, this project emphasizes the shortcomings of Canadian jurisprudence in addressing intergenerational reproductive harms, and works to offer alternative strategies. (in collaboration with Roxanne Mykitiuk, Jennie Haw, Lara Tessaro, and Mark Pioro, as part of two team grants funded by the Canadian Institutes of Health Research on the reproductive effects of exposures to brominated flame retardants and phthalates).
GOVERNING EMBRYO RESEARCH IN CANADA
Embryos remaining after in vitro fertilization are often cryopreserved—frozen—for potential future use. In Canada, there are important regulations governing consent to use these embryos to build one’s own family, or for a variety of other reasons, including donating to another family, clinical training, clinical research, and “science.” This project drew on interview research with participants from three clinic sites, as well as surveys with lab directors to identify views and perceptions about the use of surplus cryopreserved embryos. It included a number of policy interventions to address the socio-political challenges that these embryos raise, namely that many are left in storage indefinitely, with both patients and infertility clinics concerned about the legal and ethical implications of disposal. (in collaboration with NTE Impact Ethics and Dave Snow)
CONSUMING INTIMACIES: BODIES, LABOUR, CARE, AND SOCIAL JUSTICE
Through the commercialization of body parts, fluids, tissues, and care work, there are important ways in which intimate exchanges are increasingly viewed as acts of labour. Consuming Intimacies brings together an international and interdisciplinary group of scholars and artists working on body studies, social reproduction, and the commercialization of the body. Together, these scholars are examining the concepts and practices of intimacies and corporeal exchange as they are imagined as labour, that is, as productive contributions to a market economy. (in collaboration with Andrea Doucet, Robyn Lee, Lindsey McKay, and funded by the Social Justice Research Institute at Brock University).
GENDERING DIGITALITY
The gendered nature of online scholarly production, and information technology more broadly, is an important site for contemporary feminist interventions. This project examines how feminist epistemologies can contribute to the rethinking of networked technologies in terms of equity and social justice. Inspired by groups like FemTechNet and the Orlando Project, it takes a range of approaches—examining Wikipedia as a site for feminist research and pedagogy, identifying the challenges of engaging young feminists in a model committed to conventional scholarly projects, the (feminist) political economy of open access publishing, and new research on the assumptions about culture and gender built into archetypal explanations of public key cryptography (Alice, Bob, and Eve). (in collaboration with Quinn DuPont and Rise Up! A Digital Archive of Canadian Feminism).
Alana Cattapan 